Amyloidosis Living Stuff
Given the choice I would choose not to have amyloidosis.  The treatment isn't nice and some of the symptoms can be a bit of a challenge.  But I have also done things and learned things that I would never have done if I had not contracted the disease. One of them is setting up a charity and finding the energy and, more importantly courage, to launch AmyloidAction.  

I intend to share hints, tips, philosophy, the occasional rant and some quirky humour.  If you know where to look there are some great resources out there and I do not intend to duplicate them.

If you are living with amyloidosis the one mandatory site is 

The National Amyloidosis Centre             http://www.ucl.ac.uk/amyloidosis/nac

closely followed by 

Myeloma UK                                 https://www.myeloma.org.uk/?s=amyloidosis

Over time my story and thoughts will appear here.  I have never used social media and find it a bit scary  I decided to call myself Amyloidman and have the address @amyloidman but dont know what I am going to do with it.  I have a Linkedin profile and loads of ideas for blogs/articles but am not sure how best to use them.  

So bear with me while I try things out and every now and then click the big orange donate button.  Every donation goes to the NAC or the Christie Hospital

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